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Jo and Oscar were delighted to be interviewed by Jessica from Patient Worthy about managing wellbeing in NF2. nnOur health, physically and mentally is so important and especially so when its our children with NF2. Oscar was thrilled when Jessica asked him to share his lived NF2 experience.nnPatient Worthy® is an online publication that provides relevant information to rare disease patients, caregivers and advocates alike. nnWe connect those impacted by rare conditions with educational resources, advocacy groups, and news updates regarding rare disease research from across the globe. Our goal is to amplify the voices of those in the rare disease community, feature the institutions that serve them, and foster solidarity across diagnoses.nnPlease take a few minutes to have a read of this fabulous (link.in story)nn...